Help Build Sickle Cell Awareness In Your Community
If You’re a Patient, a Parent, or At Risk…
- Pregnant or thinking of having a baby? Ask for a screening test for sickle cell trait.
- Send your partner for screening, too.
- Remember to ask your baby’s doctor about your newborn’s screening results.
- Educate yourself about sickle cell disease and its treatment.
- Stay in touch with your/your child’s doctors and follow their instructions to stay healthy.
- Tell your child’s school about special sickle cell needs upon enrollment.
- Tell your employer about your sickle cell needs upon hiring.
- Connect with a hospital that treats sickle cell BEFORE you have a crisis.
If You’re a Family Member or Friend…
- Understand that sickle cell families need support.
- Stay in touch. Let them know you’re there to help.
- Offer child care and transportation when it’s needed.
- Encourage young adults to learn about their disease and stay up-to-date with self-care.
- Ask for screening for sickle cell trait, and If possible, donate blood.
If You’re a School Administrator…
- Make sure your staff knows if a student has sickle cell disease.
- Connect with Sickle Cell experts who can advise your students and staff
about sickle cell.
- Hold an “Awareness Day” to educate teachers, staff and students about sickle cell.
- Coordinate with your students’ parents and physicians to get help quickly in a crisis.
- Have alternative learning plans available for students during illness.
- Hold a blood drive at your school.
If You’re an Employer…
- Make information about sickle cell available through your health services department.
- Understand that your employees may have periods of absence when they or their children are in sickle cell crisis.
- Support patients’ efforts to obtain routine medical care so they can stay well and keep working hard.
- Make family medical leave easily available.
- Host blood drives.
If You’re a Health Care Provider…
- Include sickle cell trait and disease on your patient history form.
- Become familiar with the protocol for treating a sickle cell crisis.
- Use the Sickle Cell Information Center – www.scinfo.org – as a resource.
- Identify a sickle cell expert in your area.
- Refer patients with the sickle cell trait to a genetic counselor.
- Post information about sickle cell disease in your office.
Facts on Sickle Cell Disease (SCD) and Sickle Cell Trait (SCT)
- Over 2 million Americans carry the SCT